Who we are
Our website address is: http://davidruttenberg.com/SensorAble.
What personal data we collect and why we collect it
Comments
When visitors leave comments on the site we collect the data shown in the comments form, and also the visitor’s IP address and browser user agent string to help spam detection.
An anonymized string created from your email address (also called a hash) may be provided to the Gravatar service to see if you are using it. The Gravatar service privacy policy is available here: https://automattic.com/privacy/. After approval of your comment, your profile picture is visible to the public in the context of your comment.
Media
If you upload images to the website, you should avoid uploading images with embedded location data (EXIF GPS) included. Visitors to the website can download and extract any location data from images on the website.
Cookies
If you leave a comment on our site you may opt-in to saving your name, email address and website in cookies. These are for your convenience so that you do not have to fill in your details again when you leave another comment. These cookies will last for one year.
If you have an account and you log in to this site, we will set a temporary cookie to determine if your browser accepts cookies. This cookie contains no personal data and is discarded when you close your browser.
When you log in, we will also set up several cookies to save your login information and your screen display choices. Login cookies last for two days, and screen options cookies last for a year. If you select “Remember Me”, your login will persist for two weeks. If you log out of your account, the login cookies will be removed.
If you edit or publish an article, an additional cookie will be saved in your browser. This cookie includes no personal data and simply indicates the post ID of the article you just edited. It expires after 1 day.
Embedded content from other websites
Articles on this site may include embedded content (e.g. videos, images, articles, etc.). Embedded content from other websites behaves in the exact same way as if the visitor has visited the other website.
These websites may collect data about you, use cookies, embed additional third-party tracking, and monitor your interaction with that embedded content, including tracking your interaction with the embedded content if you have an account and are logged in to that website.
Who we share your data with
Research results may be published in peer-reviewed academic journals, and in the form of posters and conference presentations. Research participants will be able to request the results of the study, and every effort will be made to present these in lay terms. We may also publish website announcements and participate in the ICN’s biannual autism research newsletter to keep participants up to date with our latest findings. In addition, researchers in our group may give talks about our research to the general public, including to pupils and teachers at schools, and to autism organisations.
How long we retain your data
If you leave a comment, the comment and its metadata are retained indefinitely. This is so we can recognize and approve any follow-up comments automatically instead of holding them in a moderation queue.
For users that register on our website (if any), we also store the personal information they provide in their user profile. All users can see, edit, or delete their personal information at any time (except they cannot change their username). Website administrators can also see and edit that information.
What rights you have over your data
If you have an account on this site, or have left comments, you can request to receive an exported file of the personal data we hold about you, including any data you have provided to us. You can also request that we erase any personal data we hold about you. This does not include any data we are obliged to keep for administrative, legal, or security purposes.
Where we send your data
Visitor comments may be checked through an automated spam detection service.
Your contact information
Pseudonymised personal data – We collect personal data from you that will be pseudonymised (e.g. key-coded data), which includes some (often partial) personal identifiers (e.g. initials and DOB). This is done for indirect identification of participants from the information in combination with other information.
Additional information
Data Protection for this research project has been registered with UCL Data Protection Number 17345/001 as of 13 December 2019.
Researchers have completed a variety of ethical training and testing including
- UCL Data Protection for Researchers and Students (PhD)
- Freedom of Information Training for Phd Researchers
- General Data Protection Regulation
Additionally, a Data Protection Impact Assessment (DPIA) is on file with the University College London.
How we protect your data
Data will be pseudonymised, referenced only by a participant code. Personal identifiable data (e.g. names, contact info) will be kept separate from all other data collected. Personal identifiable data in electronic form will be stored on an encrypted USB stick or hard drive, kept in a locked filing cabinet in a locked office at the CCM. Personal data in paper form (e.g. consent forms) will be stored in a locked filing cabinet in a locked office at the CCM.
What data breach procedures we have in place
Personal data breaches can be the result of both accidental and deliberate causes. It also means that a breach is more than just about losing personal data.
Examples of personal data breaches
This list is non-exhaustive but it does give examples of some of the more common data breaches and ‘near misses’ that must be reported.
- accessing personal data by an unauthorised third party;
- deliberate or accidental action (or inaction) by a controller or processor affecting the security of personal data;
- sending personal data to an incorrect recipient;
- computing devices containing personal data being lost or stolen;
- altering personal data without permission;
- losing the availability of personal data; and
- any ‘near miss’ incident that had the potential to cause a data breach even though it might not have done so.
The Information Security Group (ISG) and The Data Protection Officer (DPO) are responsible for handling data breaches. If you believe there has been a breach of personal data you must complete the Personal Data Breach Reporting Form below and email it to Information Security Group and send it to ISG: isg@ucl.ac.uk.
Other methods of reporting:
By e-mail
If you have trouble filling in the above form then you should provide ISG with at least the following information:
- full details as to the nature of the breach;
- an indication as to the volume of material involved;
- the sensitivity of the breach; any timeframes that apply;
- users should put in [DPL] in the subject line when reporting the breach to ISG.
By telephone
If the incident is of a critical nature; or you have not heard back from ISG, or if you have trouble with e-mails then you telephone them on the following number: